Our lil man Zachary has Neurofibromatosis Type 1. He already has facial deformities, which no one really notices but doctors. I would have never noticed it but they did when he was 3 weeks old. It's actually something that could have been easily overlooked. His forehead is more pronounced because of the bone structure on the side of his face. Like I said, not even noticeable. I say our baby is perfect in EVERY single way. He is at risk for so much and there is NO cure or NO medication he can take for this. He's at risk for learning disabilities and being he has a brother with Autism his risk for Autism is even higher.
Our little NF1 bebe.
Zachary just hit the 17lbs mark. He's very much smaller than most babies his age. He doesn't sit up, crawl or walk yet. His balance has gotten better since he's started EarlySteps though. He is the sweetest baby, ever. He is very laid back and' low maintenance'. But he's a total mama's boy. He will be one years old next month. We're hoping that with his physical therapy, he'll be sitting up by his 1st birthday.
He is adorable and perfect :)
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